I wear multiple hats. I am a school psychologist, husband, father of 6, and - pertinent to this website - an author who has multiple invisible chronic illnesses.
My chronic illnesses include empty nose syndrome, a primary immune deficiency disorder, and bronchiectasis. As a result of empty nose syndrome and scar tissue, my nose and lungs are compromised in their ability to clear mucus. And the mucus is very thick. This contributes to more frequent and longer lasting sinopulmonary infections and sleep-disordered breathing. Consequently, for 2 to 3 hours each day, I manually remove mucus through nasal washes, steam inhalation, a nebulizer, and a vibrating vest. I also infuse daily with immune globulin to provide my body with antibodies it cannot produce on its own.
But don't let what I just shared fool you: I enjoy a fulfilling life and experience ongoing joy, peace, and happiness. Because of outstanding medical care, extensive self-educating and self-care, a supportive family, and a strong faith, I effectively manage my chronic illnesses. But I didn't want to be the only one to benefit. It was my goal, in turn, to give back to others by doing what I could do: authoring books on these conditions.
- Having Nasal Surgery? Don't You Become An Empty Nose Victim! (2007)
- ¿Cirugía nasal? ¡No caiga en las garras del síndrome de la nariz vacía! (2015) (Spanish Translation)
- Finding Joy with an Invisible Chronic Illness: Proven Strategies for Discovering Happiness, Meaning, and Fulfillment (Coming Soon!)
I am passionate about advocating for those with invisible chronic illnesses, including empty nose syndrome, through the written word. For two years - in 2016 & 2017 - I authored a monthly newsletter for the International Empty Nose Syndrome Association (ENSIA).
Now, I hope to provide readers with updates on invisible chronic illness through a regular newsletter as well. The newsletters will include an encouraging word, a humorous anecdote, or a thought-provoking musing on living with an invisible chronic illness. Please sign up on the newsletter page!
I think those who battle invisible chronic illnesses, such as empty nose syndrome, are WARRIORS.